I had my appointment with Dr. Sanjay Ramrhakiani today, who went over all of my tests and results with me. He was much more thorough and explanatory than my other doctor and I really appreciated his approach. Nothing was found in my blood tests or any of my previous tests, which means that it’s possibly just that my nerve endings near my pancreas are at a heightened sense of alertness and will identify even small amounts of pain or discomfort as severe pain back to the brain.
He doesn’t know what else could be wrong, as I tested negative for auto-immune pancreatitis and my enzyme levels for the pancreas were normal. Granted, I did get the blood work about a week after the rice incident, but he can tell for certain that I did not have any sort of pancreatitis flare-up.
He’s prescribed me a sort of anti-depressant to help reduce my brain’s pain response and has given instructions to taper down from the Dilaudid. He’s also suggested that I continue on a chicken broth diet for a few days, then branch out to other things, and hope to get to a soft food diet next week — when he can then remove the feeding tube.
Additionally (and this is the best news), the pancreatic scarring that he found is not caused from pancreatitis but is actually common in most adults that drink moderate amounts of alcohol. The scarring he said was normal and that he himself would probably have a similar looking pancreas.
I’m supposed to just start eating, starting with clear liquids and slowly move towards soft foods over the next week and then go from there.
I’m somewhat encouraged by the news, though I still have this fear in the back of my mind that there is something they’re missing. Either way, his priority is to get me off of the tube ASAP and that I’ve suffered through this enough. Hopefully, next week will be the week. We’ll see!